List of people with osteogenesis imperfecta
This is a list of cases of people who have osteogenesis imperfect.
Activists and speakers
- Fredrick Brennan – The software developer who founded the imageboard website 8chan.[1]
- Alec Cabacungan – spokesperson for Shriners Hospitals for Children.[2]
- Paul G. Hearne – A founder of the American Association of People with Disabilities.[3][4]
- Raul Krauthausen – German/Colombian activist and recipient of the Order of Merit of Germany.[5]
- Peter Radtke – German founder of Die Deutsche Gesellschaft für Osteogenesis Imperfecta, also a philologist and actor.[6]
- Sean Stephenson – an American therapist, self-help author and motivational speaker.[7]
Artists
- Erwin "Weng" Dayrit – Kapampangan Artist from Philippines, whose drawings and paintings show that “disability doesn’t mean inability.”[8]
- Sadhna Dhand – Artist from Raipur in Chhattisgarh, India, who has received the National Awards for Empowerment of Persons with Disabilities 2012 under role model category.[9]
- Mitchell Dunnam – Canadian digital artist creating and designing with computers.[10]
- Abby Green – Radio producer and cosplay artist from Niagara in Ontario, Canada.[11]
- Katherine Klimitas – Graphic designer and visual artist living in New Orleans, Louisiana, USA.[12]
- Anicee Lamoreaux – American painter (born in Belize), whose work has been exhibited at the Colorado State Capitol and The White House.[13]
- Wang Mengxing – Chinese self-taught artist who makes traditional painting and self-portraits.[14]
- Jon Wos – American artist who works primarily with oil paint, stained glass and lampworking. He is well-known for his series of self-portraits.[15]
- Eric Blackman – Visual artist from the US, primarily working with photography using alternative techniques in the digital realm.[16]
Entertainers
Gaelynn Lea playing violin
Actors
- Michael J. Anderson – American known for appearing in David Lynch works and for playing Samson Leonhart on the HBO series Carnivàle.[17][18]
- Melanie Watson Bernhardt – American actress known for playing Kathy Gordon on Diff'rent Strokes. She later did charity work and ran for public office.[19]
- Jack Binstead – British actor known for a role in the British sitcom Bad Education.[20][21]
- Julie Fernandez – British actress best known for her role in the British The Office.[22]
- Rick Howland – Canadian actor who is known for playing Trick on Lost Girl.[23]
- Leopoldine Huyghues-Despointes – French/American actress in Atlantic Avenue and founder of (dis)Abled Visionaries.[24][25]
- Kerry Ingram – British child actress best known for her role as Shireen Baratheon in the HBO series Game of Thrones and Matilda Wormwood in Matilda the Musical.[26]
- Marios Ioannou – Cypriot actor in Fish n' Chips and others.[27]
- Quentin Kenihan – Australian reality TV personality who played Corpus Colossus in Mad Max: Fury Road.[28][29]
- Tarah Lynne Schaeffer – Sesame Street[30]
- Nabil Shaban – A Jordanian-British actor and writer who founded Graeae Theatre Company, which promotes performers with disabilities.[31]
- Atticus Shaffer – American who plays Brick Heck on The Middle.[32][33][34]
Comedians
- Guillaume Bats – A French humorist.[35]
Musicians
- Randy Guss – Drummer for Toad the Wet Sprocket[36][37]
- Kalyn Heffernan – A Hip-hop artist and producer known for the group Wheelchair Sports Camp.[38]
- Gaelynn Lea – A violinist who has worked with Alan Sparhawk[39] and won an NPR Music contest.[40][41]
- Michel Petrucciani – French jazz pianist who was granted a Légion d'honneur in Paris.[42]
- Pernille Vallentin – Danish singer who also acts.[43]
- Sparsh Shah – Indian American singer and rapper who became an Internet sensation for his cover of Eminem's "Not Afraid" in 2016.[44]
Journalists and writers
- Franco Bomprezzi – An Italian journalist who received the Order of Merit in 2007.[45][46]
- Magdalena Buczek – Polish journalist and radio announcer associated to Radio Maryja.[47]
- Dyson Carter (1910-1996) - Canadian writer, editor, and political activist
- Christopher Hewitt - British poet and namesake of the Christopher Hewitt Award.[48]
- Firdaus Kanga – Parsi playwright known for Trying to Grow.[49]
- Philippe Rahmy – French speaking poet and novelist who has received the Prix Dentan among others.[50][51]
- Stella Young – She was an Australian comedian and journalist.[52]
Politicians
- Nicky Chapman, Baroness Chapman – A British peer and disability rights activist.[53]
- Theresia Haidlmayr – She had been a politician of Austria's The Greens – The Green Alternative.[54]
- Freyja Haraldsdóttir – A member of the Icelandic Constitutional Assembly of 2010.[55][56][57]
People in sports and games
- Valentin Baus – German Paralympic silver medalist in table tennis.[58]
- McKenzie Coan – American Paralympic gold medalist in swimming.[59]
- Doug Herland – American Olympic bronze medalist coxswain.[60]
- Taylor Lipsett – An American Paralympic gold and bronze medalist in ice sledge hockey.[61][62]
- Bobby Nail – American bridge player in the ACBL Hall of Fame.[63]
- Josef Neumaier – A Paralympic multiple medalist in shooting for Germany.[64]
- Nadia Porras – A Paralympic swimmer for Mexico.[65][66]
- Jeremy Synot – A former Australian wheelchair basketball player and current National Wheelchair Basketball League Head Coach of the RSL Queensland Spinning Bullets.[67]
- Jordanne Whiley – A British Paralympic bronze medalist in Wheelchair tennis at the 2012 Summer Paralympics.[68][69]
Notable as a subject
- Madge Bester – A South African woman and formerly the "world's shortest living woman."[70][71]
- Leo Beuerman – The subject of the documentary Leo Beuerman, which was nominated for the Academy Award for Best Documentary (Short Subject).[72]
- Lin Yü-chih – He had once been counted as the "world's shortest man."[73][74]
Royalty
Disputed
- French artist Henri de Toulouse-Lautrec.[76] His short stature and health problems are believed to have been due to congenital factors, but he was never diagnosed with a specific disorder and recent theories suggest that he had a mild form of osteopetrosis instead.[77]
- Viking invader of England, Ivar the Boneless: There is notable speculation about his physical condition; but objective diagnosis is not possible since his skeleton was exhumed and burnt 200 years after his death by William the Conqueror.[78]
References
- ↑ Wilson, Michael (January 17, 2014). "City Newcomer Is Let Down by a Stranger, Then the Police". The New York Times. Retrieved November 10, 2014.
- ↑ Retrieved 26 December 2015
- ↑ "AAPD Paul G. Hearne Emerging Leader Awards – AAPD".
- ↑ Jr., Robert Mcg. Thomas. "Paul G. Hearne, 48, Affable Champion of Disabled, Dies".
- ↑ Fellow: Raúl Krauthausen, germany.ashoka.org Retrieved 11 April 2013
- ↑ "Osteogenesis Imperfecta Federation of Europe".
- ↑ Gregory, Ted (May 5, 2009). "Osteogenesis Imperfecta: Motivational Speaker Sean Stephenson Uses His Disorder to Inspire Others". Chicago Tribune. Archived from the original on February 22, 2011. Retrieved August 7, 2011.
- ↑ Kapampangan Artist: Erwin “Weng” Dayrit, Retrieved 20 March 2018
- ↑ Sadhna Dhand : The Inspiring life !, Retrieved 20 March 2018
- ↑ Digital Simplicity Designs, Retrieved 20 March 2018
- ↑ Brittle bones sufferer overcomes stares and cruel comments thanks to dressing up as fictional characters, Retrieved 20 March 2018
- ↑ Kak Art & Designs, Retrieved 20 March 2018
- ↑ Anicee’s Art, Retrieved 20 March 2018
- ↑ Aspirational artist, Retrieved 20 March 2018
- ↑ Wos Art, Retrieved 20 March 2018
- ↑ Lucund Images
- ↑ "Cast: Michael J. Anderson". Mulholland-drive.net. Retrieved 2011-08-15.
- ↑ Dargis, Manohla (2005-02-07). "We're Sorry". The New York Times. Retrieved 2010-05-20.
- ↑ billie.stantonanleu@gazette.com, BILLIE STANTON ANLEU. "Melanie Bernhardt cites can do attitude in seeking District 6 council seat".
- ↑ "Chessington actor backing jeans for genes charity". Surrey Comet.
- ↑ Hawkins, Kathleen (2 February 2015). "The new breed of 'vloggers' here to challenge people" – via www.bbc.com.
- ↑ "Julie Fernandez – founder of The Disability Foundation". Tdf.org.uk. Retrieved 2011-08-15.
- ↑ "Rick Howland Interview with Chet Cooper". www.abilitymagazine.com.
- ↑ Saval, Malina (3 August 2017). "How 'Speechless,' 'Atlantic Avenue,' 'Krystal' Showcase the Underserved".
- ↑ Peyronnel, Marie Salomé (2 September 2013). "Léopoldine Huygues Despointes, the rolling star".
- ↑ "Schoolgirl nominated for prestigious Olivier Award". maidenhead-advertiser.co.uk. Maidenhead Advertiser. 19 March 2012. Retrieved 6 September 2012.
- ↑ "Leading local thespian is an actor-poet – Cyprus Mail". 26 September 2017.
- ↑ "Is this Australian cinema's greatest moment?".
- ↑ "Adelaide Now".
- ↑ Williams Cook, Sally (17 January 1994). "Girl in wheelchair joins 'Sesame Street' cast". The Free Lance-Star. Fredericksburg VA. p. B6. Retrieved 16 May 2011.
- ↑ Banks-Smith, Nancy (2003-06-13). "Short and to the point". The Guardian. London. Retrieved 2010-05-20.
- ↑ "Meet Atticus Shaffer 2006 Football Poster Child" (PDF). The Al Malaikahan. May 2006. p. 7. Archived from the original (PDF) on 7 July 2011. Retrieved 20 May 2010.
- ↑ "Shriners". Docs.google.com. Retrieved 2011-08-15.
- ↑ Heldenfels, Rich (2010-03-04). "Akron Beacon Journal". Ohio.com. Retrieved 2011-08-15.
- ↑ "Le Figaro (French)".
- ↑ "OIF Newsletter". Docs.google.com. Retrieved 2011-08-15.
- ↑ Ragogna, Mike (2010-06-15). "Huffington Post". Huffington Post. Retrieved 2011-08-15.
- ↑ Ferner, Matt (9 January 2012). "Wheelchair Sports Camp: Kalyn Heffernan On Hip-Hop, Occupy Denver" – via Huff Post.
- ↑ Minnesota Public Television Association (pdf)
- ↑ "Duluth musician Gaelynn Lea records 'Tiny Desk Concert' for ..."
- ↑ "Meet Gaelynn Lea, The 2016 Tiny Desk Contest Winner".
- ↑ Michel Petrucciani: Victory of the Spirit, International Herald Tribune, 12 January 1999.
- ↑ "Danish OI magazine (PDF)" (PDF).
- ↑ "Watch: Indian American tween Sparsh Shah creates sensation with rendition of Eminem's 'Not Afraid' – The American Bazaar". 15 March 2016.
- ↑ informatici, Segretariato generale della Presidenza della Repubblica – Servizio sistemi. "Le onorificenze della Repubblica Italiana". www.quirinale.it.
- ↑ Tesina in CL
- ↑ Greg Simons; David Westerlund (3 March 2016). Religion, Politics and Nation-Building in Post-Communist Countries. Routledge. p. 171. ISBN 978-1-317-06715-3.
- ↑ "Christopher Hewitt – disabled gay poet". 21 July 2004.
- ↑ Dallas – Movies – Willing and able Archived September 9, 2009, at the Wayback Machine.
- ↑ "Le Prix Michel-Dentan attribué à Philippe Rahmy – News". www.unil.ch.
- ↑ CBI.gov Archived 2015-09-23 at the Wayback Machine.
- ↑ Michelle Griffin. "Lunch with Stella Young". Theage.com.au. Retrieved 2013-07-26.
- ↑ "Sydney Morning Herald". Smh.com.au. 2009-09-10. Retrieved 2011-08-15.
- ↑ Haidlmayr, smilerkreativ.at, retrieved 3 March 2015
- ↑ "Icelandic woman changes mindsets". Stuff.
- ↑ Review, Iceland (1 December 2010). "Iceland Election Results Announced".
- ↑ "Kona ársins – Nýtt Líf – Freyja Haraldsdóttir – Myndasafn mbl.is". www.mbl.is.
- ↑ "Paralympics-Highlights: Das war die Nacht in Rio". 13 September 2016 – via Spiegel Online.
- ↑ "Paralympics 2016 – The OI Society of Australia – The OI Society of Australia". www.oiaustralia.org.au.
- ↑ Tone. "Rowing at Pacific Lutheran University began in 1964" (PDF). Google.com. Archived from the original (PDF) on February 12, 2006. Retrieved 2011-08-15.
- ↑ "USA Hockey". webcache.googleusercontent.com. Retrieved 2011-08-15.
- ↑ Paralympics info, McKinney Courier-Gazette, 6 April 2006.
- ↑ "Nail, G. Robert – American Contract Bridge League". www.acbl.org.
- ↑ "Athlete Bio". ipc.infostradasports.com.
- ↑ "ESPN: The Worldwide Leader in Sports". ESPN.com.
- ↑ COAH.-, Joel Flores Maltos / EL SIGLO DE TORREÓN / TORREÓN,. "Nadia Porras viaja a Parapanamericanos".
- ↑ "Breaks toughen Donna Synot and her family". Herald Sun. Retrieved 14 April 2015.
- ↑ "Athlete Bio". ipc.infostradasports.com.
- ↑ "Lucy Suker and Jordanne Whiley survive match point to win bronze". The Daily Telegraph. 7 September 2012.
- ↑ Murphy, Wendy (2002). Orphan Diseases. Twenty-First Century Books. p. 78. ISBN 978-0-7613-1919-1. viewed at Google Books
- ↑ "World's shortest man, woman campaign for disabled". CNN News Asia. Cable News Network. 3 November 1998. Retrieved 2008-12-10.
- ↑ "LJ World".
- ↑ "CNN – World's shortest man, woman campaign for disabled – November 3, 1998". www.cnn.com.
- ↑ Murphy, W. (2002). Orphan Diseases: New Hope for Rare Medical Conditions. Twenty-First Century Books. ISBN 0-399-14218-5
- ↑ (in Italian)GenovaQuotidiana
- ↑ "Henri de Toulouse-Lautrec > Biography > Chronology". Toulouselautrec.free.fr. Retrieved 2011-08-15.
- ↑ "Noble figure". The Guardian. London. 2004-11-20. Retrieved 2010-05-20.
- ↑ The Vikings, Frank. R. Donovan, author; Sir Thomas D. Kendrick, consultant; Horizon Caravel Books, by the editors of Horizon Magazine, Fourth Edition, American Heritage Publishing Co.: New York, 1964, LCC# 64-17106, pp. 44–45; 145, 148.
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