Nusrit Shaheen
Nusrit "Nelly" Shaheen | |
---|---|
Born | 1984 (age 33–34) |
Residence | Coventry |
Known for | Oldest survivor of rare genetic condition |
Nusrit "Nelly" Shaheen (born 1984) is the longest-living survivor of harlequin-type ichthyosis in the United Kingdom and one of the longest-living in the world.[1] She lives in Coventry, and was one of nine children. Four of her siblings had harlequin, but died at a young age.
Many survivors of harlequin are predicted to die before or during their teens, but Nelly is now in her 30s and contributing to living a long, healthy and rewarding life.[1]
Medical condition
Nelly's medical condition, harlequin-type ichthyosis, is a seriously rare genetic condition which means her skin forms up to 10x more than the normal human being. This condition is not contagious, and is obtained at birth.
Television appearances
Nelly appeared on Channel 5 in 2017, on Extraordinary People - Nelly: The Snakeskin Woman.
References
- 1 2 "Inspirational Nusrit Shaheen Still Smiling". Coventry Telegraph. 14 April 2016. Retrieved 2 April 2017.