Lizzie Velásquez

Lizzie Velásquez
Velásquez at the 2017 Texas Book Festival
Born Elizabeth Ann Velásquez
(1989-03-13) March 13, 1989
Austin, Texas, U.S.
Nationality American
Other names Lizzie Velásquez
Alma mater Texas State University
Occupation Motivational speaker
First spoke with Barbizon modeling acting agency in 2014
Known for Public speaking, anti-bullying activism, public appearances, and book authorship
Parent(s) Rita Velásquez
Guadalupe Velásquez

Elizabeth Anne Velásquez (/ˈlɪzi vəˈlæskɛz/; born March 13, 1989) is an American motivational speaker, author, and YouTuber. She was born with an extremely rare congenital disease called Marfanoid–progeroid–lipodystrophy syndrome that, among other symptoms, prevents her from accumulating body fat and gaining weight. Her conditions resulted in bullying during her childhood and ultimately inspired her to take up motivational speaking.

Early life

The eldest of three children born to Rita and Guadalupe Velásquez,[1] Lizzie was born on March 13, 1989, in Austin, Texas.[2] Born four weeks prematurely, her birth weight was only 1.219 kilograms (2 pounds, 10 ounces).[3][4]

Velásquez studied at Texas State University[3] until late 2012, majoring in communication studies.[5] She is a Roman Catholic and has said of her faith, "It's been my rock through everything, just having the time to be alone and pray and talk to God and know that He's there for me."[6][7][8]

Condition

Velásquez's condition is a very rare, previously undiagnosed and non-terminal genetic disorder.[9] Her condition bears similarities to many other conditions, especially progeria. Medical researchers at the University of Texas Southwestern Medical Center previously speculated that it may be a form of neonatal progeroid syndrome (NPS) (Wiedemann-Rautenstrauch syndrome), which does not affect Velásquez's healthy bones, organs, and teeth.[10]

Velásquez is medically unable to gain weight, which is a hallmark of her rare disorder.[11] She has never weighed more than 29 kg (64 lbs), and reportedly has almost 0% body fat.[12][13] Moreover, she is required to eat many small meals and snacks throughout the day, averaging between 5,000 and 8,000 calories daily.[12][13] Additionally, she is blind in her right eye, which began to cloud over when she was 4,[14] and she is vision-impaired in her left eye.[15]

Around 2015, it was elucidated that Lizzie Velasquez and another woman named Abby Solomon with a similar but less severe variant of the condition have mutations in the FBN1 gene, which encodes the proprotein of the novel hormone asprosin, and that this mutation results in asprosin deficiency and is responsible for their conditions.[16][17] The condition is specifically called Marfanoid–progeroid–lipodystrophy syndrome or simply Marfan lipodystrophy syndrome.[18][19]

Career

Ever since she was dubbed the "World's Ugliest Woman" in a video posted on YouTube in 2006, when she was 17, Velásquez has spoken out against bullying. In January 2014 she gave a TEDxAustinWomen Talk titled "How Do YOU Define Yourself"[20] and her YouTube videos have received over 54 million views.[21] She is known for her optimism.[4][14][22][23][24] For National Bullying Prevention Month in 2015, she hosted a social media challenge for Bystander Revolution's Month of Action.[25]

Her first work, co-authored with her mother, Rita, is a self-published autobiography published in 2010 in English and Spanish. It is called Lizzie Beautiful: The Lizzie Velásquez Story and includes letters Velásquez's mother wrote to her as a child.

Velásquez has also written two books directed at teenagers, which share personal stories and offer advice. Be Beautiful, Be You (2012) shares her journey "to discover what truly makes us beautiful, and teaches readers to recognize their unique gifts and blessings".[22] The book is also available in Spanish as Sé bella, sé tú misma (2013).[23] Another book, Choosing Happiness (2014), talks about some of the obstacles Velásquez has faced and how she "learned the importance of choosing to be happy when it's all too easy to give up".[24] Both books were published by a Redemptorist publishing house, Liguori Publications.

Dare to be Kind, first published in 2017, is about the importance of being kind, gleaned from her first-hand experience being bullied personally and online.[26]

A documentary film titled A Brave Heart: The Lizzie Velásquez Story premiered at SXSW on March 14, 2015.[27] The movie aired on Lifetime on October 17, 2016.

Velasquez began starring on her own Fullscreen original series titled Unzipped since April 2017.

See also

References

  1. ↑ ‘Ugliest woman in the world’ teaches about true beauty (September 19, 2012 by Paloma Corredor; published on voxxi.com)
  2. ↑ "Texas Birth Record search for Elizabeth Velasquez". Myheritage.com. Archived from the original on January 11, 2014.
  3. 1 2 Texas Woman Can't Gain Weight, Bullied Over Looks ABC News, September 14, 2012
  4. 1 2 'People should stop staring and start learning': World's ‘ugliest woman’ gives courageous interview by Amy Oliver, Daily Mail online, September 13, 2012
  5. ↑ Allen Reed (Dec 3, 2009). "Lizzie's Story". University Star. Retrieved 17 December 2016.
  6. ↑ Walker, Ken (31 December 2013). "'World's Ugliest Woman' Proves That Jesus Makes All Things Beautiful". Charisma. Retrieved 28 June 2016. Raised in the Catholic parish where both her parents work, Velasquez's decision to follow Christ came near the end of high school. She credits her faith with enabling her to endure everything from scorn to physical infirmities. "It's been my rock through everything, just having the time to be alone and pray and talk to God and know that He's there for me," she says.
  7. ↑ Collier, Myles (7 January 2014). "Lizzie Velasquez, Once Labeled World's Ugliest Woman, Using Faith in Jesus to Spread Message of Love and Tolerance (VIDEO)". The Christian Post. Retrieved 28 June 2016.
  8. ↑ Hart, Lucinda van der (2014). "Lizzie Velasquez". Premier Christianity. Retrieved 28 June 2016. I was born and raised in the Catholic faith and my parents have always been very involved in church and volunteering. It was always my dad's way of wanting to say to God, 'We will be as close as we can with you, volunteer and do what we can, as long as you help keep Lizzie healthy.' And so we did that our whole lives.
  9. ↑ Hartenstein, Meena. "Lizzie Velasquez, 21-year-old with undiagnosed genetic disorder, must eat 60 times a day to survive". New York: NewYork Daily. Retrieved June 23, 2013.
  10. ↑ Freeman, David (29 June 2010). "Girl Must Eat Every 15 Minutes: Lizzie Velasquez Stays Skeletal Despite Nonstop Eating". CBS News. Retrieved 14 March 2015.
  11. ↑ Meet woman who can’t gain weight: At 21, she’s 60 pounds Today Health at today.com, July 6, 2010
  12. 1 2 How Do YOU Define Yourself Lizzie Velasquez at TEDxAustinWomen
  13. 1 2 "The girl who must eat every 15 minutes to stay alive". The Telegraph. 28 June 2010. Lizzie Velasquez weighs just four stone and has almost zero per cent body fat but she is not anorexic. [...] Despite consuming between 5,000 and 8,000 calories daily, the communications student, has never tipped over 4st 3lbs.
  14. 1 2 Lessons from the 'World's Ugliest Woman': 'Stop Staring and Start Learning' by Lylah M. Alphonse of Yahoo! Shine, September 13, 2012
  15. ↑ Velasquez, Lizzie. "About Lizzie".
  16. ↑ Bordo, Sara (Director); Campo, Michael (Writer); Velasquez, Lizzie (Star) (2015). A Brave Heart: The Lizzie Velasquez Story. Event occurs at 45:50 to 50:36.
  17. ↑ Kennedy, Pagan (25 Nov 2016). "The Thin Gene". The New York Times. Retrieved 22 May 2017.
  18. ↑ Graul-Neumann LM, Kienitz T, Robinson PN, Baasanjav S, Karow B, Gillesen-Kaesbach G, Fahsold R, Schmidt H, Hoffmann K, Passarge E (2010). "Marfan syndrome with neonatal progeroid syndrome-like lipodystrophy associated with a novel frameshift mutation at the 3-prime terminus of the FBN1-gene". Am. J. Med. Genet. 152A: 2749–2755. doi:10.1002/ajmg.a.33690. PMID 20979188.
  19. ↑ Jacquinet A, Verloes A, Callewaert B, Coremans C, Coucke P, De Paepe A, Kornak U, Lebrun F, Lombret J, Pierard GE, Robinson PN, Symoens S, Van Maldergem L, Debray FG (2014). "Neonatal progeroid variant of Marfan syndrome with congenital lipodystrophy results from mutations at the 3' end of FBN1 gene". Eur. J. Med. Genet. 57 (5): 230–234. doi:10.1016/j.ejmg.2014.02.012.
  20. ↑ "How do you define yourself? - Lizzie Velasquez at TEDxAustinWomen". TED. Archived from the original on August 9, 2016.
  21. ↑ "Lizzie Velasquez". YouTube (website report of video views). Archived from the original on October 25, 2016.
  22. 1 2 Velasquez, Lizzie. "Be Beautiful, Be You". Liguori.org. Liguori Publications. Retrieved 7 April 2015.
  23. 1 2 Velasquez, Lizzie. "Sé bella, sé tú misma". Liguori.org. Liguori Publications. Retrieved 7 April 2015.
  24. 1 2 Velasquez, Lizzie. "Choosing Happiness". Liguori.org. Liguori Publications. Retrieved 7 April 2015.
  25. ↑ "Lizzie Velasquez's Challenge: Born Beautiful". Bystander Revolution. 22 October 2015. Retrieved 20 April 2016.
  26. ↑ "Dare to Be Kind: How Extraordinary Compassion Can Transform Our World". publishersweekly.com. PWxyz, LLC. Retrieved 6 November 2017.
  27. ↑ Hawkins, Kathleen (14 March 2015). "'Bullies called me the world's ugliest woman online'". BBC News. Retrieved 14 March 2015.
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